Sturge-Weber Foundation Internet: ahoward@sturge-weber.com http://www.sturge-weber.com/

Company Information: Sturge-Weber Foundation PO Box 418 Mount Freedom, NJ 07970 USA Ph. 973-895-4445 ext.4

Media Contacts: Anne Howard Director of Partner Programs The Sturge-Weber Foundation P.O. Box 418 Mt. Freedom, NJ 07970 Phone: (973) 895-4445 Fax: (973) 895-4846 Email: ahoward@sturge-weber.com

The Sturge-Weber Foundation was begun in 1986 by parents who had received a diagnosis of Sturge-Weber syndrome for their baby, but could find no emotional support, education, or information for parents. Today it is a 501(c)3 not-for-profit educational, support and advocacy group with an international partnership. It supports selected research into the causes and treatment of Sturge-Weber syndrome (SWS), as well as Klippel-Trenaunay syndrome (KT) and Port Wine Stain (PWS) conditions.

Recent Company Headlines
11/29/11	›	Sturge Weber Foundation Now at Rady Children's Hospital-San Diego
07/13/11	›	July 17-19: The Sturge-Weber Foundation to Hold 12th International Conference
12/17/10	›	Sturge-Weber Foundation Board Announces New Members
12/10/10	›	Sturge-Weber Foundation Publishes Revised Textbook
12/01/10	›	Through Dec. 7: Sturge-Weber Holding Online Auction
10/14/09	›	Sturge-Weber Foundation Announces Major Leap Forward In Sturge-Weber Syndrome Research
07/17/09	›	PHOTO AVAILABLE: NEOCUTIS Inc. Donation to The Sturge-Weber Foundation Supports Education, Support and Research
02/27/09	›	Howard Ash To Join Sturge-Weber Board
02/25/09	›	March 6: Dermatologist Dr. Chris Zachary Focus Of Tribute By Sturge-Weber Foundation
02/04/09	›	PHOTO AVAILABLE: Laser Research Funded By Sturge-Weber Foundation
09/24/08	›	Sept. 27: Sturge-Weber Foundation To Co-host Centers Of Excellence Meeting
07/30/08	›	Aug. 22: Sept. 13 Yankees/Rays Box Seat Tickets Pitched By Sturge-Weber Foundation
06/03/08	›	PHOTO AVAILABLE: Rare Diseases spotlighted by The Sturge-Weber Foundation in World Premiere Video
05/12/08	›	May: A Month of Awareness for Rare Vascular Disorders springs into Action at the Sturge-Weber Foundation
05/06/08	›	The Sturge-Weber Foundation Announces Research Grant
05/06/08	›	The Sturge-Weber Foundation awards Research Grant for First-time Laser Therapy Comparison
01/14/08	›	Sturge-Weber Foundation Joins With NORD To Celebrate 25th Anniversary of the Orphan Drug Act
12/12/07	›	PHOTO AVAILABLE: Ayers to Steer Sturge-Weber Foundation Development Activities with Skill
07/09/07	›	July 12-15: The Sturge-Weber Foundation To Hold 11th International Conference
05/31/07	›	Zell Secures Grant For Sturge-Weber Foundation
10/27/06	›	Sturge-Weber Foundation To Honor Leading Vascular Birthmarks Dermatologist
08/20/06	›	August 22: Safeco Field Hosts Sturge-Weber Foundation Nine-Year-Old For First Pitch
08/02/06	›	The Sturge Weber Foundation Announces New Professional Advisory Board Chair
06/13/06	›	The Sturge-Weber Foundation Announces Centers Of Excellence
03/27/06	›	SPANISH PRESS RELEASE: La Fundación Sturge-Weber Lanza La Semana De La Consciencia, Mayo, 2006
03/27/06	›	FRENCH PRESS RELEASE: Sturge-Weber Fondation Lance Semaine De Conscience, Mai 2006
03/24/06	›	Sturge-Weber Foundation Launches Week Of Awareness, May, 2006
02/16/06	›	The Sturge-Weber Foundation To Honor Dr. Roy Geronemus March 3, In San Francisco
01/27/06	›	The Rockefeller University To Host The Sturge-Weber Foundation Translational Research Summit
01/09/06	›	SPANISH PRESS RELEASE: La Fundacion Sturge-Weber Celebrara El 11 De Febrero Una Fiesta Mardi Gras
01/09/06	›	Sturge-Weber Foundation To Hold Mardi Gras Party February 11
12/21/05	›	La Fundacion Sturge-Weber Nombra Nuevos Miembros De La Junta
12/20/05	›	The Sturge-Weber Foundation Names New Board Members
12/08/05	›	Sturge-Weber Foundation To Hold A Mardi Party February 11, 2006
11/17/05	›	Sturge-Weber Foundation To Hold Mardi Party February 11, 2006
08/23/05	›	High School Football Team Adopts Sturge-Weber Foundation
07/08/05	›	July 21-24: Sturge-Weber Foundation Holds 10th International Conference In Hershey, Pa.
05/11/05	›	VIDEO AND PHOTO AVAILABLE: Sturge-Weber Foundation Board Member, Erin Rosas, Named Winner Of The Stonyfield Woman With Organic Style Readers' Voice' Award
05/11/05	›	PHOTO AVAILABLE: The Sturge-Weber Foundation Held Successful Annual National Week Of Awareness May 1-7
04/27/05	›	VIDEO AND PHOTO AVAILABLE: Week Of Awareness For Sturge-Weber Syndrome Slated For May 1-7, 2005
03/21/05	›	Progress Studying The Burden Of Disease In Sturge-Weber Syndrome
03/04/05	›	Sturge-Weber Foundation Announces Grant Award
02/09/05	›	VIDEO AVAILABLE: New Product To Benefit Sturge-Weber Foundation
12/02/04	›	The Sturge-Weber Foundation CEO Appointed To The Coalition Of Skin Disease Board
09/08/04	›	Sturge-Weber Foundation Launching An Endowment Campaign To Honor Grandparents

Media Items

La Fundación Sturge-Weber Lanza La Semana De La Consciencia, Mayo, 2006	SPANISH PRESS RELEASE: La Fundación Sturge-Weber Lanza La Semana De La Consciencia, Mayo, 2006
La Fundación Sturge-Weber Lanza La Semana De La Consciencia, Mayo, 2006	SPANISH PRESS RELEASE: La Fundación Sturge-Weber Lanza La Semana De La Consciencia, Mayo, 2006
La Fundación Sturge-Weber Lanza La Semana De La Consciencia, Mayo, 2006	SPANISH PRESS RELEASE: La Fundación Sturge-Weber Lanza La Semana De La Consciencia, Mayo, 2006
La Fundación Sturge-Weber Lanza La Semana De La Consciencia, Mayo, 2006	SPANISH PRESS RELEASE: La Fundación Sturge-Weber Lanza La Semana De La Consciencia, Mayo, 2006
Sturge Weber Foundation	Sturge-Weber Foundation To Hold Mardi Gras Party February 11
Sturge Weber Foundation	Sturge-Weber Foundation To Hold Mardi Gras Party February 11
Sturge-Weber Foundation	Sturge-Weber Foundation To Hold Mardi Party February 11, 2006
Sturge Weber Foundation	Sturge-Weber Foundation To Hold Mardi Party February 11, 2006
High School Football Team Adopts Sturge-Weber Foundation	High School Football Team Adopts Sturge-Weber Foundation
High School Football Team Adopts Sturge-Weber Foundation	High School Football Team Adopts Sturge-Weber Foundation
The Sturge-Weber Foundation	VIDEO AND PHOTO AVAILABLE: Sturge-Weber Foundation Board Member, Erin Rosas, Named Winner Of The Stonyfield Woman With Organic Style Readers\' Voice\' Award
The Sturge-Weber Foundation	VIDEO AND PHOTO AVAILABLE: Sturge-Weber Foundation Board Member, Erin Rosas, Named Winner Of The Stonyfield Woman With Organic Style Readers\' Voice\' Award
The Sturge-Weber Foundation	PHOTO AVAILABLE: The Sturge-Weber Foundation Held Successful Annual National Week Of Awareness May 1-7
The Sturge-Weber Foundation	VIDEO AND PHOTO AVAILABLE: Week Of Awareness For Sturge-Weber Syndrome Slated For May 1-7, 2005
Sturge Weber Foundation	VIDEO AVAILABLE: New Product To Benefit Sturge-Weber Foundation